The feasibility of a nurse-led telephone support intervention for family members and caregivers of people with Multiple Sclerosis

Context and background International research shows that although many of the unmet needs of informal caregivers of people with multiple sclerosis (PwMS) living in the community fall within the scope of the role of the nurse,... [ view full abstract ]

Context and background
International research shows that although many of the unmet needs of informal caregivers of people with multiple sclerosis (PwMS) living in the community fall within the scope of the role of the nurse, there is a dearth of nursing interventions for them. To bridge this gap, a nurse-led telephone support intervention was developed and tested.
Aim of the study
To test the potential effectiveness and feasibility of a newly developed nurse-led telephone support intervention for family members and caregivers of PwMS.

Methodology

The intervention was tested using an exploratory randomised trial, and delivered by nurse specialists in MS (NSMS). Seventy-one support person (SPs) from three research sites were randomised to intervention (n=33) or control (n=38). Data were collected using questionnaires at baseline, week 6 and week 13. Interviews with key stakeholders informed the feasibility component of the study. Data were analysed using one-way ANCOVA and content analysis. Ethical approval and access was obtained at all sites.

Key findings
The acceptability and feasibility of delivering the intervention and carrying out a randomised trial were supported. According to the SPs, the greatest benefits included increased support, confidence and knowledge. High levels of satisfaction were reported. A significant between groups difference (p=0.025) with moderate effect (0.35) was found in support of the intervention for improved preparedness to care following final data collection. No significant between groups differences were reported for self-efficacy in obtaining respite and problem management, burden or quality of life.

Conclusion: This intervention was feasible to deliver and test in a randomised trial. The findings suggest that, with additional tailoring in specific areas, the intervention has the potential to help ameliorate some of the unmet needs of SPs. The findings highlight the potential and unique contribution that NSMS can make to support people who support PwMS.