Miriam Galvin (Academic Unit of Neurology, School of Clinical Medicine TCD), Tom Burke (Academic Unit of Neurology, School of Clinical Medicine, TCD and Beaumont Hospital, Dublin 9), Bernie Corr (Department of Neurology, National Neuroscience Centre, Beaumont Hospital, Dublin 9), Caoifa Madden (Academic Unit of Neurology, School of Clinical Medicine TCD), Iain Mays (Academic Unit of Neurology, School of Clinical Medicine TCD), Regina McQuillan (Beaumont Hospital, Dublin 9 and St Francis Hospice, Raheny, Dublin 5,), Virpi Timonen (School of Social Work and Social Policy, Trinity College Dublin, Dublin 2), Anthony Staines (School of Nursing and Health Sciences, Dublin City University), Orla Hardiman (Academic Unit of Neurology, School of Clinical Medicine, TCD and Beaumont Hospital, Dublin 9)