The economic case for interventions for people with autism and/or their families and carers

Background and objectives: Autism spectrum disorders (ASDs) are often associated with educational, health, social, and financial costs, not only for the individual with ASDs but also for their families and carers, and for... [ view full abstract ]

Background and objectives: Autism spectrum disorders (ASDs) are often associated with educational, health, social, and financial costs, not only for the individual with ASDs but also for their families and carers, and for society as a whole. While numerous interventions are now available for individuals with ASDs and/or their families and carers, and evidence on their effectiveness is growing, economic evidence is still scarce. The primary aim of our work is to examine the economic case for a range of interventions in the ASDs area.
Methodology: We reviewed and summarised existing evidence on the effectiveness and cost-effectiveness of interventions in the ASDs area. Then we carried out new empirical analyses as both the need and opportunity arose, using simulation modelling or examining economic questions in other ways. In addition, we consulted experts about research currently underway and to understand the relevance and significance of available evidence.
Results: Preliminary results showed a paucity of economic evidence; heterogeneity in the conceptualisation of interventions and their personalisation; and paucity of evidence outside ‘trial contexts’. An example was cognitive behavioural therapy for anxiety in people with ASDs, which has quite a large evidence base, mainly on effectiveness, but with few studies reporting economic information.
Conclusions: Examining the economic case for a range of interventions in the ASDs area is crucial to provide policy makers and purchasers with valuable information to inform their difficult decisions.

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