You are storing your sensitive research data where?! Navigating data privacy and ethics requirements within Compute Canada's infrastructure
Kaitlyn Gutteridge
University of British Columbia
Kaitlyn Gutteridge is the Research Data Privacy and Security Officer for the ARC team at UBC. In addition, Kaitlyn serves as a member of the Compute Canada Security Council. She holds a Master of Science degree from the London School of Hygiene and Tropical Medicine where she focused her epidemiology training on multilevel modeling of chronic disease development. She previously held positions supervising the implementation of large-scale research initiatives at Simon Fraser University and the Centre for Hip Health and Mobility. Most recently, she served as the Privacy and Governance Lead at Population Data BC. In her position at Population Data BC, Kaitlyn served as the organization’s Privacy Officer and managed the negotiation, development, and execution of information sharing agreements and associated policies & procedures.
Abstract
The escalating need for large-scale computing capacity in health and life sciences domains presents Compute Canada with the unique opportunity to establish the necessary infrastructure to meet the needs of this novel and... [ view full abstract ]
The escalating need for large-scale computing capacity in health and life sciences domains presents Compute Canada with the unique opportunity to establish the necessary infrastructure to meet the needs of this novel and expanding user community. However, whether it is Personal Health Information or Intellectual Property, additional layers of protection throughout the data lifecycle are required to comply with ethics, funding and legislative conditions that govern access to and use of sensitive data. For example, consent must be sought for research participant data to be transferred outside of Canada; research ethics requires that data must be archived for a minimum of five years prior to destruction; and data must be stored within the physical location articulated within applications and consent forms. A lack of harmonization of requirements on an institutional, provincial and national level, along with the limited necessity for Compute Canada's policies and processes to consider these challenges to date, further compound the complex data protection landscape.
This presentation will consider key privacy and ethical requirements throughout the research data lifecycle that present opportunities to build on current policy and process, which were traditionally developed under a service model primarily centered on non-sensitive data. It will contemplate current technical and administrative safeguards in place at Compute Canada, and gaps presented by the on-boarding of sensitive data to Compute Canada’s systems. Best practice scenarios and recommendations for data privacy and ethics will be put forward. The presentation will be formatted to allow for ongoing discussion between the presenter and audience.
Authors
-
Kaitlyn Gutteridge
(University of British Columbia)
Topic Area
Advanced Research Computing (ARC): Research data management: Challenges, opportunities and
Session
CM2.1 » Data Privacy and Security (10:00 - Tuesday, 21st June, CCIS 1-430)
Presentation Files
The presenter has not uploaded any presentation files.
