PICTURE THIS: USING PHOTOVOICE TO EXPLORE THE LIVED EXPERIENCE OF HIGH-FUNCTIONING STROK SURVIRORS

Introduction: Community participation is a critical component of occupational engagement and quality of life (QOL) following stroke. An increasing number of stroke survivors are presenting with minimal functional impairments.... [ view full abstract ]

Introduction: Community participation is a critical component of occupational engagement and quality of life (QOL) following stroke. An increasing number of stroke survivors are presenting with minimal functional impairments. These high-functioning stroke survivors are often discharged with minimum community supports and services for engagement in occupations. Despite their high level of function, they may have overlooked impacts from stroke that hinder their participation.

Objectives: To explore the lived experience of high-functioning stroke survivors and their perspectives on limitations in community participation.

Methods: Photovoice, a community-based participatory research method, was used with 5 high-functioning stroke survivors who photo-documented their experiences related to daily occupations. Stories and meanings behind the photographs were elicited through 5 focus group sessions, which were audio-recorded, transcribed verbatim and analyzed to identify themes. Participants hosted 2 community photo exhibitions to educate the public and stimulate change.

Results: Five themes emerged: importance of appropriate and accessible services, financial determinants of QOL, lack of understanding and consideration for persons with disability, self-reliance and dependence on others, and emotional and behavioural impacts after stroke. The community photo exhibitions attracted stakeholders and provided insight into a need for change.

Conclusion: Photovoice is a client-centred approach that has strengthened our understanding of the occupational needs of high-functioning stroke survivors through the use of participant-generated data. This may contribute to the understanding of the barriers and facilitators for engaging in daily occupations of stroke survivors, and the development of meaningful community programs and services that can increase participation and QOL for stroke survivors.