Evaluation of a program designed to support parents of children with special needs and create an empowering dialogue between them and professionals

A three year evaluation study of an innovative program initiated by two mothers of children with special needs and supported by governmental and philanthropic foundations, provided an opportunity to identify the power... [ view full abstract ]

A three year evaluation study of an innovative program initiated by two mothers of children with special needs and supported by governmental and philanthropic foundations, provided an opportunity to identify the power relations that exist in dialogues between professional and parents with special needs. In contrast to the equalitarian, close and reciprocal dialogue that are created between these parents, dialogues with professions are often unequal, patronizing and protective. The evaluation follows and witnesses changes in these relationships over time as a result of participation in the program.

The goal of this presentation is to share the understandings gained through a qualitative analysis of the evaluation data gathered through documentation of activities, face to face interviews and focus groups, and to describe pathways that led to emancipatory and empowering dialogues based on the matrix of power relations offered by Jerry Tew (2006).

The highlight of the program included a 'parent to parent' component, were experienced parents created a close relationship with parents whose child was recently diagnosed with special needs. In addition, 'dialogue workshops' were held for parents of children with special needs and professionals in order to expose stereotypes and attitudes that underlie obstacles to communication and negotiate more productive working partnerships.

Findings showed that the 'parent to parent' relationship created closeness and empathy, provided support, facilitated coping with uncertainty and fears of future developments, and were a source for relevant information and guidance. Professionals who attended the 'dialogue workshops' described needs similar to those experienced by the parents which required reflective work regarding their own fears and pain related to working with families of children with special needs. During the workshops suggestions for creating more respectful, equalitarian, empowering and co-operative work relations were offered.

At the end of the presentation, recommendations will be provided.